Well - it's been a busy week - the past fortnight feels like it's been a month! So much to sort out,find out and deal with.
Was getting frustrated and anxious towards the end of this week as I still hadn't heard from the hospital about a start date for my treatment and I'd previously been told it should be starting next week. Your whole life feels like it's on hold until you know what's happening.
After a very stressful day with me and my husband both getting overwrought with each other I finally was phoned up on Thursday afternoon by the nurse who will be giving me my treatment at home and told it will start on Wed 12th March with bloods being taken the day before.
We've been going from very positive and happy thoughts to very black thoughts this week. It's hard to get the balance at the moment when the news is so fresh!
People's reactions are interesting. I met a neighbour in town on Wednesday and told her as I know the bush telegraph is rife in our village and she'd get to know soon anyhow. She asked if I'd come to terms with it yet - after 5 days! I know she meant well of course but I don't even know what this news about my health really means in real terms anyhow so I think it is a very gradual coming to terms with thing over a long time (hopefully). Another neighbour said I'd be so relieved when it was all over - meaning the treatment - I didn't like to say that well I wouldn't be around as I am likely to be on some sort of treatment for the rest of my life now. It's weird but you really can find a sort of black humour even when faced with your own mortality as sometimes it just doesn't really feel as if it's really happening to you! You feel somehow removed from yourself especially as I currently feel so well!
Friends I've told so far have been mostly extremely supportive but I had a massed forwarded email from one friend today telling of the dangers of keeping bottled water in a car ( it doesn't say for how long)and the links to breast cancer. It said that's how Sheryl Crow got breast cancer. My friend had also written to me " I hope this helps"! For one I think it highly unlikely that Sheryl Crow can possibly definitively what caused her breast cancer and two I find these emails that claim to have found the definitive cause of things and you must send this to all your female friends to keep them safe rather distasteful and patronising! Also even if it's true - I never have gone in much for buying bottled water, never leave it in my car and also it's not a lot of help to me now I've got secondaries but I'll stop ranting now as I'm sure my friend meant well!
Don't get me wrong, it's not that I'm not interested in possible causes - we've read loads of books and articles over the past 5 years, changed and improved our diets greatly, get organic fruit, veg and meat boxes weekly and have reduced the amount of chemical cleaning products and gone over to different shampoos to try to avoid the very strong chemicals but these silly emails that scaremonger people and are generally not very accurate really annoy me!
I'm very excited about my Playstation 3 that I've treated myself to and will hopefully arrive next week! I feel like a teenager again about it although of course such things were not in existence when I was a teenager! If I'm going to be spending time at home recovering from my weekly chemo and drug treatments I want something worthwhile to do! Ha ha!
I'm also an avid reader and must start cross-stitching again which I took up 5 years ago when I first was having chemo to while away the time.
I'm still busy teaching the piano as well. It's strange carrying on a semi-normal existence whilst carrying this great burden at the same time but I guess there people all over doing exactly the same but this doesn't always make it any easier!
I've enjoyed having my teaching to distract me this week. I do genuinely enjoy what I do when the child enjoys learning too - it can be purgatory teaching a reluctant practiser for them and for me!!
I'm hoping I'll be able to keep up with my badminton too which I took up last August and really love despite being convinced for most of my life that any kind of sport and me just don't go! I could never get the tennis ball over the net despite lots of coaching as a child so convinced myself I must have been dyspraxic which my husband regards as hilarious as he says I'm very well-co-ordinated. It's funny what labels stick on to you as a child and go with you into your adult life!
Haven't done much running this week but am still determined to try and run most or all of the way in the Race for Life I'm doing in Cardiff in June. Have never done anything like that before. Less than a year ago I struggled to run a few yards for a bus without nearly collapsing with stitch so it will be a big personal achievement for me especially this year!
Happy St. David's Day!
Saturday, 1 March 2008
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11 comments:
Happy St David's Day to you, too (although not much of it left now!) Sorry to hear about your neighbour's faux pas - people can be very insensitive with the best of intentions, and my advice with the forwarded emails is only read them on days you're feeling really rhinoceros-skinned, otherwise bin them.
I know someone who will be VERY envious of your Playstation 3... I think we may have to plan a trip over the border pretty soon.
Lots of love
LBD xxx
I guess people mean well, including me - but it is scary being faced with someone who has cancer - especially the non-curable kind - do you mention it, not mention it, be bright and positive and tell of miracle cures, or tell horror stories . . . noooooo not the horror stories. It is frightening how you can get two left feet in this situation which you then merrily stuff in your mouth when faced with someone's serious illness. There is also the thing that people think they know how they would react in your given situation . . and talk to you from that perspective . . . but I have learned that the mind does not behave in the way you were convinced it would - so won't mutter platitudes at you . . . well not unless you really want me to. Equally I am guilty of opening mouth when not engaging brain - not that it would do much good - engaging brain that is - very blonde brain here.
As for the play station - you will get no envy from me - I have 43 left thumbs and am complete rubbish at any and all the games and hide it by looking down my nose at anyone who is clearly a whizz at them and TUT mutter about waste of time . . .
Berlimey good luck with the running - I have knackered knees and ankles from years of going over on the ankles - long ligaments and flat feet causing cartilage damage to the knees . . . so any attempt to run just causes shooting pains in knees and ankles. . . that is my excuse and I am sticking to it.
Hi
Your post title made me want to come over to your blog.
I've been through the breast cancer thing, had mastectomy year ago and just had my reconstruction sorted out, so have some sense of what you're going through, though not the next stage, as so far so good i'm clear.
It's so hard, people just don't know what to say or how to respond, i found blogging helped enornmously, sharing with people you hardly know but who seem to want to support, a wonderful feeling.
Not heard about the bolttled water thing, though people have told me all sorts of things. How it occured is no longer of any interest, main thing now is to keep as healthy as possible and fight back. Accept all treatment and all support and keep on living for the day and keep smiling in the face of adversity.
Though don't forget to cry too, it does you good at least once a week.
Big Purple coo Hug ,
Love Muddie X
Hello, I don't think I've read your blog before. I'm not much good with finding something to say, but wanted to acknowledge I'd read it. Hope to hear more from you. Sending best wishes.
Faith
Helllooooo again . . . so glad you have found your way onto our Blog Announcement - you really are welcome to announce that you have written your blog on there. You will get comments from Purplecoo members - if you are 'up' for that - but they are an amazing bunch and could support a snowman through a firestorm, whilst making him laugh himself silly at the same time.
hello brave lady ...have read your blogs...welcome to the world of blogging from where you will undoubtedly find support, friendship and understanding...keep running girl and keep blogging.
take care
It is so hard for people to know what to say isn't it? I was ill a couple of years ago (and found blogging about if afterwards very therapeutic) and sometimes felt that I was protecting other people when they had intended no doubt to be supportive. sometimes people just get it wrong! You sound very forgiving really and am absolutely with you on the "causes" emails - not a good thing!
Do you find the not knowing whats coming next the worst thing to deal with? Now you have a plan of action I hope it helps give you control and a sense of moving forward.
I hope the treatment doesn't make you feel too yucky. Be kind to yourself rest when you fell you have to, run inbetween times.
Cross stitch is a lovely hobby isn't it. I used to find it so relaxing and absorbing that no meals were made until I finished that row!!
Surround yourself with positive thoughts and people, reject the negative.
Happy belated St Davids day in the land of "my fathers"
Bydd yn ofalus
Lorraine xx
For inspiration I would most definitely go and read elizabethm's remarkable story of her cancer. All the (continued) best!
Ditto Milla - Elizabeth's blog is moving and uplifting. Worth a read.
Sorry I am a bit late on this one.
I found when I was diagnosed I wanted to talk to fellow sufferers because only they understood. Perhaps Breast Cancer Care would be of use to you as well, they have forums and contacts you can be in touch with. I did a lot of surfing around too. Other people just don't know how to react that's the problem.
Keep blogging, spoil yourself, take things real easy. Purple power is with you.
Caitx
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